THIS WAS A VERY HELPFUL AND INFORMATIVE BOOK
This was a very helpful and informative book
Reviewed by HDL
February 29th, 2012
My 10 yr old daughter became very ill on November 30, 2011. We could not figure out why, every time she ate, she would scream for hours. She had no allergies, no food sensitivities, no constipation issues, nothing. She had been a very healthy straight a sudent enjoying the fifth grade. She could not go to school, she could not sleep. We were working wi the GI team at CHildren's hospital in Boston. We were there so much i could drive there almost blindfolded. Plus two overnights) she biopsied neg for ulcers or celiacs.
We were told that she had 'post infectious IBS' (even though she had had no outward symptoms) and given instructions on how to manage her pain. When I asked the attending drs what we should feed her - because clearly food was causing a problem - they said do not go out of your way on any special diet. You do not want her to feel less normal than any other fifth grader. What?? My husband and I were stunned. When we fed her what ever she normally ate (and I am a mom that is into being green, feeding the kids organics 80% of the time, but allowing for fun foods so as not to be obsessive) she would scream for hours. Sometimes standing there screaming though gritted teeth. Her belly would puff out, bloated, making horrible noises. Missed 2 mos of school. THAT was not how a normal fifth grader acted!!
So i had to dig in and research the hell out of her symptoms. She would be up for most of the night screaming in pain so i would sit next to her and troll the net while she watched endless tv to distract her. Her symptoms very closely matched the description for SIBO. Random people on twitter kept telling me to check out the GAPS or SCD diet but I initially ignored it. After 2 months of zero success we finally did a test a home. We fed her no complex carbs no grains and NO sugars (basically followed the book's advice) for 48 hrs and started to see her pain fade. Then we took one slice of organic french bread dipped in plain egg fried up in butter like french toast and a small side of maple syrup. Oh, holy hell within an hr of that she was screaming, howling curled up in ball for 6 hrs. I finally gave her some OTC sleep med at 1am we could not take it any more. It became clear to us what we needed to do.
We ordered this book we bought the staple ingredients and we started to educate ourselves. It was not easy. But i learned so much once i started reading the different message boards, blogs, all the reviews here on amazon. It was hard at first, there were some slip ups, but we have moved her from a horrific world of endless days of pain to just about normal. Almost 100% normal.
Now I have to say that we have modified the diet a bit because it was clear that the intro stage was making her worse. She was not constipated or had diarrhea during this whole problem previously, but on the intro diet she had awful diarrhea. But the concept is solid, no sugars other than honey and simple carbs. My daughter IS able to eat rice with no problems, though rice is NOT allowed on the scd diet. We do maintain a gluten free diet though. She is back in school- back to straight a's, in the school play and loving life. Yes she misses her old diet. Yes I have to always think ahead and cook/plan meals better. Yes, I miss just grabbing a pizza on a Friday night and not thinking about what am I going to make for dinner tonight. And she has been great about not cheating at school when junk goes around. She says it is not worth all that pain she has endured. To not hear her scream for hrs, or to be able to feed her a nutritious meal and not wait anxiously afterward for the whimper that will escalate into screaming, it is worth it.
Read the book, read the websites, it will help guide you. Pecanbread is a good site.
I gave it four stars because it does recommend sweeteners like aspartame. I think this book needs some updating to reflect on more of what we know now about SIBO and maybe more restaurant options. And because we were able to modify it with success even though it says you must have 'fanatical adherence' which is probably true in most cases but not all. We had to find our own path but this is certainly our guide book.
Thanks to Elaine! Break the cycle...
For those of us who are relieved to have access to information which empowers us to take care of ourselves, this book is a godsend. With it I have been able to completely regain my health without the use of medications. It is a tragedy that this information is not available to everyone with digestive disorders, so that we all can make informed personal choices about how we wish to approach our treatment. People with the determination to regain their health will almost certainly benefit from learning about this diet.
- Nancy Emerson